Welcome Genetic Councilor!

Councilor FAQ

We promote genetic counseling to all of our customers, not just those coming to us for health reasons, but those signing up with EDNA to acquire the financial benefits of owning their data. The larger percentage of our customers are seeking financial benefit however this is expected to change as EDNA begins a new evolution of our Marketing & Sales Strategy.

We use a combination of blockchain-driven 256-Bit encryption and proprietary technology developed by us, and verified by multiple forensic scientists as “useless” and “impossible to use” when asked to determine identity from an example of the data as stored.    

Most definitely. Not to worry, the process is simple:

  1. Provide us with your credentials/accreditation.
  2. We verify.
  3. We grant your account GC privileges.
  4. You create your public Councilor Profile.*
  5. Kick back and watch our customers become your clients.

*This process will become even easier once our (in progress) EDNA APP is complete and available. 

If you use calendly.com (like we do) to manage your bookings you can include a link on your profile page. For that matter, you could use any on-line booking tool by simply including your public link. Otherwise, you can include your email address on your GC Profile.

100% yes. Profiles are largely blank, and completely up to you to determine how to present your business.   

EDNA provides a standard informed consent form where you can acquire a client signature. Alternately, you can upload to your profile any form of your choosing. It’s worth noting, that both forms once signed, are encrypted and sent to your account via blockchain to your account where it is stored forever – and never visible to anyone but you.  

EDNA stores ZERO client/customer data. All we ever keep about our customers/patients is their account name.

EXAMPLE Account Name:

Everything else is 100% controlled by the Customer/Patients/Counselors/Researchers Blockchain Private Key.

EXAMPLE Private Key:

Don’t worry about trying to remember that insanely strong cryptography password. The (coming Soon) EDNA APP will store it for you, and will control all your account functions with a click of a button.  

EDNA is a platform where secure communication can be exchanged between you and your clients. Further, since the storage of genetic information is controlled by both that secure link and uses EDNA IP to protect the owners genome. The EDNA APP therefore is the only way to securely allow communication between GC’s and their clients. 

We do not. We leave everything up to the professionals — You. 

We are interested in playing a role in accepting insurance. However our policy of Zero retained customer data is a bit at cross-purposes with the regulations surrounding stepping into that space. If you have thoughts on how we might accomplish that, feel free to share it with us. For now – billing is between you and your client.

We could easily offer that. For now, we would like to add enough Genetic Counselors to our platform to make a survey worth examining. We’d prefer to let you decide if the added expense to us of moderating such an offering if comments/reports beyond a number of stars system would be of benefit.

It’s a pretty simple policy:

  • Ownership of the genetic data lies exclusively and permanently with the Data Owner (consumer/patient).
  • Sharing of genetic data is never permissible without the blockchain signature stamp of the Data Owner.
  • Violations of the policy will trigger legal action by EDNA, Inc. on behalf of the Data Owner.

Technical means to detect violations of this policy are in place. 

Once again, EDNA retains ZERO information about our customers beyond their blockchain account name once their samples have been sequenced, stored on-chain and control of the Account turned over to the customer. If they loose their account keys, we are powerless to help them recover their data. Likewise, we can never be compelled to turn over customer information – we simply do not have it.

Currently, we charge Genetic Councilors $0.00 to create a profile and participate and provide GC’s (once verified) a free blockchain account to manage your business. 

If your service is a Flat Fee service, we charge the consumer/patient a 10% platform usage fee at signup and post acceptance by you as a client.

If you bill hourly, the same applies though it’s slightly more involved as each hour delivered must be reported to the EDNA APP. 

If you bill on a sliding scale fee, please contact us for a quick email exchange so that we can appropriately present your service – you can also usually manage this from your profile

There are several reasons to sign-on with EDNA:

  • We to the initial sourcing of potential clients for you. For free.
  • We provide secure communication between your clients and you. For free.
  • We securely deliver the genetic data to you, and will work hard to insure you get the data in a format you want to work in.
  • We believe EVERY Human should be genetically counseled, so you can count on us to promote your services at every turn.
  • You can use EDNA’s AI “GC-AI-1” to quickly pre-screen your clients for pathogenic possibilities (for your eyes only).  

Yes we do! When one of our customers signs up for counseling, our GC-AI goes to work, after updating itself with the latest entries in the NCBI’s Cinvar database for any new pathogenic entries, it begins searching or any of the 291,447 entries (as of today)  found in your clients data. Any hits the AI finds are added to report for your eyes only. The report has a hyperlink back to the Clinvar database entry and a “click to expand” description.

Please Note: We are working on the AI and training it to output a “more suitable for a trained professional” description.    

EXAMPLE report entry for each item found:

GRCh38/hg38 1p36.33-35.1(chr1:99125-34026935)x3


The notation you provided refers to a specific region of the human genome and provides information about the copy number of that region.

Breaking down the data:

– **GRCh38/hg38**: This refers to the Genome Reference Consortium Human Genome Build 38, also known as hg38. It is the 38th version of the human reference genome and is widely used in genomic work to align and analyze DNA sequences.

– **1p36.33-35.1**: This refers to a location on chromosome 1. The chromosome is divided into two arms, a short arm ‘p’ and a long arm ‘q’. The numbering system 36.33-35.1 indicates regions from the tip of the short arm (p arm) of chromosome 1. Specifically, it’s ranging from sub-band 36.33 near the end of the chromosome to band 35.1, which is slightly closer to the centromere (center of the chromosome), spanning a range of sections within the p arm of chromosome 1.

– **(chr1:99125-34026935)x3**: This part gives the exact base pair coordinates for the genomic region being referred to, from base pair 99,125 to base pair 34,026,935 on chromosome 1. The ‘x3’ indicates that this region is present in three copies.

Normally, humans have two copies of each chromosome and therefore two copies of each region of DNA—one from each parent. Having ‘x3’ means there is an extra copy of this particular region, which may suggest a genetic duplication or a copy number variant in this part of chromosome 1.

These copy number variants can sometimes be associated with diseases or developmental disorders, especially if the duplicated region contains genes. For example, duplications in some parts of 1p36 have been associated with developmental and neurological disorders, although such associations can vary widely in their effect and may not always lead to disease.

If this data is found in medical or genomic research, it would suggest that the individual from whom the data was derived has a triplication of this specific genomic region, which may or may not have clinical significance. Further investigation and clinical correlation would be required to understand whether this finding has any phenotypic consequences.

– **GRCh38/hg38:** This refers to the Genome Reference Consortium Human Reference 38, also known as hg38. It is a version of the human genome assembly that acts as a “reference” for genomic studies.

– **1p36.33-35.1:** This describes a specific location on human chromosome 1. The “p” arm denotes the short arm (as opposed to “q”, which would denote the long arm). The numbers that follow it (36.33-35.1) refer to specific banding patterns observed under a microscope when chromosomes are stained. These numbers represent sub-regions of the chromosome, moving from the tip (the terminal end) towards the center (the centromere).

Here’s a breakdown of the banding pattern notation:
– “1p” is chromosome 1, short arm.
– “36.33” is a sub-band of the specific region the closest to the chromosome’s end.
– “35.1” is a subsequent region, going towards the chromosome’s centromere.

– **(chr1:99125-34026935):** This part provides the exact base pair range for the mentioned region on chromosome 1, from the 99,125th base pair to the 34,026,935th base pair.

– **x3:** This indicates the copy number variation within the specified genomic region. A “x3” means there are three copies of this particular DNA segment, suggesting there could be an extra copy in addition to the usual two copies that are typically found in the genome (one inherited from each parent).

In summary, this data describes a region on the short arm of chromosome 1. The region extends from band 36.33 near the tip of the chromosome to band 35.1 closer to the centromere, encompassing base pairs 99,125 to 34,026,935, and indicates that in this individual or sample, there are three copies of that specific genomic segment, rather than the normal two. This could be relevant in the context of a genetic test for abnormalities, which might have implications for health or development.

What Next?