Security is a paramount consideration in the realm of EDNA genetic sequencing, and addressing concerns about hacking is pivotal. Fortunately, hacking is a minimal concern in comparison to other issues, primarily because EDNA adopts a robust approach to safeguarding genetic data.

Here’s a breakdown of the security measures in place:

1. **Offline Processing and Blockchain Security:**
– When a consumer’s DNA sample is processed offline, it undergoes conversion into digital data.
– This digital data is then securely stored on the blockchain, a decentralized and tamper-resistant ledger.

2. **Immediate Removal of Information:**
– Upon the consumer’s receipt of access keys, their genetic information is promptly and completely removed from EDNA’s systems.
– This proactive step ensures that there is no residual data left vulnerable to potential breaches.

3. **Blockchain and IPFS Encryption:**
– EDNA leverages proprietary techniques to secure genetic information not only on the blockchain but also on the Inter Planetary File System (IPFS).
– Military-standard encryption protocols are employed, ensuring a high level of protection against unauthorized access.

4. **Access Control Mechanisms:**
– Access to decrypted genetic data is strictly limited to the owner of the data and individuals they choose to invite.
– This ensures that only authorized parties have the ability to decrypt and access the genetic information.

In essence, EDNA’s security framework revolves around the proactive removal of data from vulnerable systems, coupled with cutting-edge encryption technologies deployed on both the blockchain and IPFS. This multi-layered approach ensures that genetic information remains private, with access strictly controlled and limited to authorized individuals. The military-grade encryption adds an extra layer of assurance, aligning EDNA with the highest standards of data protection in the digital landscape.

Ensuring the integrity and security of genetic data is a top priority at EDNA, and our stringent vetting process plays a pivotal role in maintaining that commitment. Individuals seeking access to our platform, whether for research purposes or genetic counseling services, undergo a thorough vetting process to guarantee responsible and ethical usage of DNA data.

Key aspects of our approach include:

1. **User Control and Ownership:**
– Full control of the genetic data rests entirely with the data owner – be it the individual sampled or their parent/guardian.
– EDNA does not hold any control over the data; instead, we empower individuals to have 100% authority over their genetic information.

2. **Proprietary Technology Safeguards:**
– Our proprietary technology ensures that genetic data is utilized strictly in accordance with the owner’s authorizations.
– This means that the data is accessed only when and where explicitly permitted by the data owner, offering a granular level of control.

3. **Blockchain-Controlled Storage:**
– To fortify the security of genetic information, we’ve implemented a unique blockchain-controlled storage solution.
– This innovation ensures that any attempt to recover or recreate an individual’s data or identity without the requisite individual key for that DNA is practically impossible.

By intertwining robust vetting procedures, proprietary technology safeguards, and blockchain-controlled storage, EDNA establishes an ecosystem where users have unparalleled control over their genetic data. Our commitment to ethical practices and cutting-edge security measures ensures that individuals can confidently engage with our platform, knowing that their privacy and data integrity are our utmost priorities.

The vetting process involves an examination of peer reviewed publications by the researcher or their team, as well as a lightweight background check for key player(s). In some cases EDNA may require a bond be posted to compensate data owners should the researcher be responsible for data loss or violations of the EDNA Terms of Service.   

Our platform allows researchers to specify just about any possible criteria they are interested in. They can offer money in exchange for the data use, let users know they are accepting donations of both.

The EDNA app (under construction) and smart-contract can then hunt up qualified candidates in many cases, or post a global notification to partially qualified users. The receive a notification on their cell phones and emails detailing the offer research has made.

If they determine they wish to opt-in on this research, a button click sends their encrypted data to the EDNA escrow service – once all sides of the requirements are met between user and researcher, the data and any funds are swapped.   

EDNA uses a utility token to reduce friction and costs of this transaction. The token is not crypto or cryptocurrency. 

We at EDNA believe Genetic Counseling is a core service that should be provided to every EDNA Data Owner. To that end we intend to provide a platform where Counselors can provide information about their services and a public profile. To facilitate their work, EDNA is experimenting with our proprietary AI to include checking your data for over 291,000 (and growing) known and suspected conditions that are reported by scientists as causing disease or potentially causing disease. 

Use of our AI is only permitted by law to certified genetic councilors.     

Most Blockchains carry with them 4 embedded tools that EDNA makes extensive use of, this is entirely true for any blockchain EDNA chooses to run our services on:

1. Encrypted Storage: The EDNA sequencing process results in a MASTER FILE. transmitting that tiny file to a data owner turns over any and all control to that data owner and only that data owner.
2. Encrypted Messaging: It’s trivial to send an encrypted message on most blockchains, allowing for total privacy when sending messages to and from EDNA <–>Data Owner, Data Owner <–> Genetic Councilor, Data Owner <–> Physician and Data Owner <–> Researcher.
3. Escrow Smart-Contracts: The EDNA smart-contract has the capacity to act as an escrow service between researcher payment for data use and the data owners DNA data. This not only insures total trust-less function, but complete transparency of all transactions on the EDNA platform, and allows EDNA to evaluate and publish the true market value of human DNA. 
4. Friction-Free Instant Transactions: EDNA works quite hard to serve the impoverished. Have a look at our for World Changers page to learn more. Humans living in these conditions are rarely “banked”. The do however have access to cell phones and understand Bitcoins. Whole economies exist in impoverished Africa that run on cryptocurrencies. These 2 facts enable them to participate in the EDNA platform. Further buyers of EDNA Shovels may be re-paid by hundreds or even thousands of micro-payments. EDNA uses its utility tokens to keep a financial ledger of who owns what and who is due what. Then when a user (data owner or shovel buyer) is ready to “cash out” either in cryptocurrency or bank wire transfer we can make that happen with ease. During the process of building up funds – the owner of money did not have to pay a slew of bank fees and charges.  

This question points directly at EDNA’s proprietary information. Talking too much about security is a good way to allow our software to end up compromised. We have a series of systems and processes that protect genetic information. Investors who have signed an NDA with EDNA are allowed a tiny peek at this.  

Benefits:

1. We can serve and help the impoverished by letting  investors view DNA Data as a financial asset / commodity.
2. We can add to the bottom line of Patient Advocacy Groups for the first ever expenditure that actually returns more than they spend GROWING their ability to impact the diseases they fight to cure.
3. We can do the same for philanthropists
4. Treating genetic data as an asset can attract investment into genomics and personalized medicine, accelerating research and the development of new treatments and diagnostic tools. This could potentially lead to breakthroughs in understanding complex diseases like cancer, Alzheimer’s, and rare genetic disorders.
5. As a new asset class (INVENTED by EDNA), genetic data could spur economic growth through the creation of new markets and industries, including biotechnology startups, data analysis firms, and personalized health consulting services.
6. The commercial investment in genetic data can further personalized medicine, tailoring treatments to individuals’ genetic profiles, potentially improving treatment efficacy and reducing side effects.
7. Individuals might gain a new way to capitalize on their data, potentially receiving compensation or other benefits in exchange for sharing their genetic information… or even ALL their personal information. Data is the new dollar! You heard it here first.

Risks:

1. Elevating genetic data to an asset class heightens privacy concerns. There’s a risk of sensitive data being mishandled, misused, or accessed by unauthorized parties, leading to potential exposure of highly personal health information.
2. The monetization of genetic data could exacerbate health and economic disparities. Those who can afford to access their genetic information or benefit from personalized medicine may gain significant health advantages, while others may be left behind. Additionally, there’s a risk that the value derived from such data may not be equitably shared with the individuals providing it.
3. Individuals may be compelled to share their genetic data due to economic necessity, potentially without fully understanding the implications or having adequate protections in place. Moreover, there’s a concern about the commodification of biological information, where human genetic data is reduced to a tradeable commodity without considering ethical dimensions.
4. Developing a regulatory framework that protects individuals’ rights and privacy while fostering innovation and ensuring equitable access to the benefits of genetic research will be challenging. This includes questions around who has the right to trade, access, or profit from genetic data.

The EDNA Solution:

To navigate these potential benefits and risks, a multi-stakeholder approach involving ethicists, policymakers, researchers, and the public will be crucial. Establishing robust ethical guidelines, transparent consent processes, and equitable benefit-sharing mechanisms, alongside stringent data protection and privacy laws, will be essential for realizing the positive aspects of treating genetic data as an asset class while mitigating its risks. As this field evolves, continuous dialogue and adaptable regulatory frameworks will be necessary to balance innovation with the imperative to protect individual rights and societal values.

The DNA of any given human is worth between 70 and 100-thousand dollars. Impoverished communities and villages (Latin and African in particular) command a premium in the DNA marketplace – since they make up under 3% and 2% respectively of the available to research DNA. 

EDNA is a simple platform allowing transactions to occur. We don’t believe (nor would any sane company) that we are entitled to all of that value. We charge a small percentage when significant profits are made and delivered. Our fees are reasonable and clearly stated up-front. We see ourselves as briefly trusted  custodians. Nothing more. There are other companies operating in this industry. Their ethics are buried in their terms of service. Read closely, and you’ll see their true colors.  

EDNA can aid the impoverished because we view their data as their property – not ours, and we treat it accordingly

EDNA feels the following list  fully covers the commercialization of genetic data and its ethical considerations, reflecting the balance between the potential for innovation and the need to protect individual rights and privacy. Key ethical issues that EDNA has considered and fully addressed within its platform include:

### 1. **Privacy and Confidentiality**
– **Risk of Re-identification:** Despite anonymization techniques, there remains a risk that individuals could be re-identified from their genetic data, especially as databases grow larger and more detailed.
– **Data Breach Risks:** The storage and handling of genetic data by commercial entities amplify the risk of unauthorized access through hacking or data breaches, potentially exposing sensitive health and genetic information.

### 2. **Consent**
– **Informed Consent:** Individuals must be fully informed about how their genetic data will be used, stored, and shared, including any potential commercial applications. The nature of consent obtained by companies is crucial, with concerns about whether participants fully understand the implications of their consent.
– **Secondary Use of Data:** Genetic data initially collected for one purpose (e.g., health testing) might later be used for other commercial purposes (e.g., pharmaceutical research), raising questions about whether original consent covers such uses.

### 3. **Ownership and Control**
– **Data Ownership:** Who owns genetic data? The individual from whom it was derived, the entity that sequenced it, or both? The commercialization of genetic data challenges traditional notions of personal data ownership.
– **Control Over Data:** Individuals may lose control over how their genetic information is used, especially once it is shared or sold to third parties. This includes concerns about whether individuals can control or limit future uses of their genetic data.

### 4. **Equity and Access**
– **Access to Benefits:** There is a risk that the commercialization of genetic data could lead to unequal access to the benefits derived from such data, including new medical treatments or technologies, potentially exacerbating existing health disparities.
– **Participation Equity:** The genetic data available for research and commercialization may not be representative of the global population, potentially leading to biases in research findings and products developed using this data.

### 5. **Discrimination and Stigmatization**
– **Genetic Discrimination:** Individuals could face discrimination based on their genetic information, particularly in areas like employment and insurance.
– **Stigmatization:** The use of genetic data in research and commercial applications could contribute to the stigmatization of individuals or groups with certain genetic traits or predispositions.

### 6. **Public Trust**
– **Transparency and Trust:** The manner in which companies handle genetic data can significantly impact public trust in genetic testing and research. Ethical missteps or breaches of trust can lead to public skepticism and reluctance to participate in genetic testing.

### Addressing the Ethical Considerations
To address these ethical considerations, several measures have been implemented by EDNA, including:
–

The commercialization of genetic data raises several ethical considerations, reflecting the balance between the potential for innovation and the need to protect individual rights and privacy. Key ethical issues include:

### 1. **Privacy and Confidentiality**
– **Risk of Re-identification:** Despite anonymization techniques, there remains a risk that individuals could be re-identified from their genetic data, especially as databases grow larger and more detailed.
– **Data Breach Risks:** The storage and handling of genetic data by commercial entities amplify the risk of unauthorized access through hacking or data breaches, potentially exposing sensitive health and genetic information.

### 2. **Consent**
– **Informed Consent:** Individuals must be fully informed about how their genetic data will be used, stored, and shared, including any potential commercial applications. The nature of consent obtained by companies is crucial, with concerns about whether participants fully understand the implications of their consent.
– **Secondary Use of Data:** Genetic data initially collected for one purpose (e.g., health testing) might later be used for other commercial purposes (e.g., pharmaceutical research), raising questions about whether original consent covers such uses.

### 3. **Ownership and Control**
– **Data Ownership:** Who owns genetic data? The individual from whom it was derived, the entity that sequenced it, or both? The commercialization of genetic data challenges traditional notions of personal data ownership.
– **Control Over Data:** Individuals may lose control over how their genetic information is used, especially once it is shared or sold to third parties. This includes concerns about whether individuals can control or limit future uses of their genetic data.

### 4. **Equity and Access**
– **Access to Benefits:** There is a risk that the commercialization of genetic data could lead to unequal access to the benefits derived from such data, including new medical treatments or technologies, potentially exacerbating existing health disparities.
– **Participation Equity:** The genetic data available for research and commercialization may not be representative of the global population, potentially leading to biases in research findings and products developed using this data.

### 5. **Discrimination and Stigmatization**
– **Genetic Discrimination:** Individuals could face discrimination based on their genetic information, particularly in areas like employment and insurance.
– **Stigmatization:** The use of genetic data in research and commercial applications could contribute to the stigmatization of individuals or groups with certain genetic traits or predispositions.

### 6. **Public Trust**
– **Transparency and Trust:** The manner in which companies handle genetic data can significantly impact public trust in genetic testing and research. Ethical missteps or breaches of trust can lead to public skepticism and reluctance to participate in genetic testing.

### Addressing the Ethical Considerations

To address these ethical considerations, several measures have been implemented at ENDA, including:
– **Robust Privacy Protections:** Implementing advanced data protection measures and ethical handling policies.
– **Clear, Comprehensive Consent Processes:** Ensuring informed consent that clearly communicates how genetic data will be used, stored, and shared.
– **Regulation and Oversight:** Developing and enforcing regulations that protect individuals’ rights and privacy without stifling innovation.
– **Public Engagement:** Engaging with the public to discuss concerns and expectations around the commercialization of genetic data.

The ethical landscape surrounding the commercialization of genetic data is complex, requiring ongoing dialogue among stakeholders, including individuals, commercial entities, ethicists, and policymakers, to ensure that the benefits of innovation are realized ethically and equitably.

Implementing advanced data protection measures and ethical handling policies.
– **Clear, Comprehensive Consent Processes:** Ensuring informed consent that clearly communicates how genetic data will be used, stored, and shared.
– **Regulation and Oversight:** We comply and enforce all regulations that protect individuals’ rights and privacy without stifling innovation.
– **Public Engagement:** Engaging with the public to discuss concerns and expectations around the commercialization of genetic data.

The ethical landscape surrounding the commercialization of genetic data is complex, requiring ongoing dialogue among stakeholders, including individuals, commercial entities, ethicists, and policymakers, to ensure that the benefits of innovation are realized ethically and equitably.

It means we can help billions of people monetize their data, without banking fees and loss of time as interest-greedy bankers hold funds (in reality, just moving digital data from one account to another: an instantly possible transaction).

Blockchain DeFi lets EDNA move incredibly fast, incredibly inexpensively and to pretty much any given human planet-wide.    

We are working like mad men to build a simple EDNA APP. Our app is designed to run on iPhone, Android and Web connections. 

Blockchain is challenging to use. This whole very new technology requires a non-insignificant understanding of the tech, its builtin security and management of the owners KEYS to the property (data) stored in the owners safety-deposit-box. 

We want to make it so easy to use our app that most users will never know there is a blockchain underneath the hood. Simplicity and a zero-learning curve our our primary objectives as we create our app.

As far as transparency goes, we have that solved with blockchain. ALL transactions in the EDNA system are visible by anyone. The blockchain shows an account name participating in the transaction and the amount here is an example of what is visible on the public blockchain

You can see the account names involved in any transaction – in the case above it’s purely transferring funds. When data is shared though EDNA, there will be a similar entry on the chain detailing which account received what data. The data itself is never visible to the public.

We smash it. Obliterate it. Stomp up and down on it and light it on fire. It’s not ours. It belongs to the DNA Data Owner. Period. As soon as the keys to unlock the data are given to the proper owner. All traces of traces of that purchase and related data re erased and over-written on our hard drives. It can not be recovered by us or anyone else.

We do retain the following data on computers not connected to the internet:

• Blockchain Account Name  
• Secret Key-Word given to the data owner when the key was turned over

This data is preserved so that down the road – should a customer call us we can do our best to help them… but…  

Here is the “got-ya” in the EDNA system. You can clearly see the data owners DNA data is NOT saved by EDNA. IF the data owner looses his or her key once EDNA has turned over control, that data and the value in it is just as lost as the key. EDNA can not recover it. We take great pains to explain this to our data owners. With total control – comes total responsibility. 

A data owners key looks like this…
5J3T2tXWnnp8Cqh2Dp7vFhU41CuRTmVgRZLHtpfgfBdP9CKmeJV  

The best way to care for a key and insure you never loose it, your data and the money your data is worth is this…

1. Print out on paper 3 copies of your key. Most libraries will let you do this for a few cents a copy.
2. Put one copy where you keep valuable stuff in your home: Remember this key is actually equal to $70,000.00 to $100,000.00 United States Dollars – If you held that much money in your hands, where would you hide / secure it?
3. Give another copy to someone you would trust with 100,k
4. Put the final copy in a bank safe deposit box. Maybe you know and trust someone who already has a box? Maybe your local bank offers a small box for only a little bit of money. If mom puts your key where she forgot, and your apartment burns down, or you drop your iPhone out a window, where will you turn? 

We leave policy advocacy up to you. You are the people with invisible capes. The unsung heroes. What we can do and do is offer groups and individuals like yourselves a way to MAGNIFY funding you do raise. We believe in what you do and want very much to support it.

We have ranked every country on the planet both by poverty and pervasiveness of diseases that likely end in death. 

We have done the same for every fist-world country by zip code. 

Spend a few dollars and test us out. 

Buy a few EDNA Shovels, or book a call with us and find out anything you need to know about us and our programs.